Sunday, April 8, 2012

Week Four!

We've reached the halfway point! It's all downhill from here, baby!

Jack is doing great. We've had a few rough days but I don't expect him to be on pointe every single day. He's still an almost three year old, feeding issues aside, and they all push buttons on different days.

Starting Monday I sat in the room with him while he ate instead of the Observation Room and he seemed to have no issue with the change. Tuesday they taught me the Feeding Protocol, which consisted of me feeding his main therapist apple sauce in one of the most awkward 45 minutes of my life. BUT Tuesday night I fed him dinner and have fed him every single meal since then that I've been there for. Steve got trained yesterday so now we both now how to feed him!

They slowed down on new foods this week because they were more concerned about him accepting bites from me but we did get two new foods in, cauliflower-which he tolerated and pizza. Pizza. What a finicky food pizza is. Bite one of pizza he loved it. At the next meal, he threw it. Same with the meal after that. BUT once you get it in his mouth, he seems to like it. No faces, no gagging. Oy. He's a butt sometimes. :P

In ST and OT, he's doing great. He ate Nutter Butters and Rice Krispie Treats in ST this week to work on lateral chewing and he ate fish sticks in OT on Friday to work on pacing himself. Apparently this kid can tear up some fish sticks.

As far as how long, we're still looking at May 7th. Which, honestly, is fine with me. Tomorrow starts Week FIVE! So May 7th really isn't that far off. We can totally do this plus if TriCare will pay for it, I'd love for him to have as much exposure to the protocol as possible before we go home. And honestly, as hard as it is to be away from Daphne and Steve and all our friends at home, I know Jack is going to have a really hard time leaving all his friends at KKI and the staff. Everyone there is wonderful and has made this entire adventure so much more pleasant.

So that's where we are. I know this week we're looking to add macaroni and cheese, mashed potatoes and WATERMELON because Jack asks for it every.single.day. The kid has never in his life had watermelon and now he's obsessed with it. Monkey Lunchbox on his iPad has been a good influence!

Until my Week Five update!

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