I checked my email today (after previously complaining on Facebook about never getting calls back from KKI) and what do you know? I had an email from the Feeding Clinic. All about Jack's upcoming admission. As it turns out, it had been sitting in my inbox since yesterday afternoon. Guess I need to check my email more, huh?
Anyway. Back to the important stuff. It didn't contain an official start date but there's a good reason why. Number one, they wanted to make sure that the timeline they presented us with worked for us. And number two, once we approve the timeline, they need to get TriCare's approval before we get the real date.
But we do have a timeline. MARCH. Next month. I'm terrified and happy and anxious and worried and a million other different emotions. I'm so happy that everything is coming together and he'll be going in the NEXT month. But I'll be sad to leave Daphne for that long and to only see my beautiful, little girl on the weekends.
The email went into a bit of detail about his life there. He'll have a roommate. So we'll be living with another kid and parent. Awkward but okay. He'll be allowed to leave the hospital a total of 8 hours each week. He can bring a few of his favorite toys (I have to put his name on them, Theodore is getting a special name tag sewn in him with my phone number) and I can take my Kindle. We'll go on a tour when we get there. We'll see his room, see the therapy rooms, the "preschool" room, the cafeteria where I'll eat, good places to take him on his down time stuff like that.
The first week we're there will mostly be intense evaluations that will shape his treatment. I'm guessing they're still hoping it'll only take 6 weeks for him? But I'm not sure. I'm hoping it'll only take 6 but he'll stay there as long as he needs to (and TriCare will let him) until he gets better.
All in all, I'm happy that we're finally moving forward. Right now I'm just overwhelmed. I can't wait for it to be finished and for our little boy to finally eat. I know most people don't get it but it's going to be crazy to see him eat something as simple as a banana for the first time.
Anyway, if you managed to make it through this jumble of an entry, I thank you. Perhaps I should wait a day before I update but I wanted to get the news out as soon as we knew.
I feel a little overwhelmed on your behalf! But mostly I'm thinking of you and knowing that you will make it through this time. You have been a wonderful mom to Jack every day of his life, and these next few weeks will be a different kind of wonderful- making sacrifices so that he can be helped. I don't think I personally know another parent so self-sacrificing. I love you all and I know you can do this- and that Jack can thrive in the treatment.
ReplyDelete